ICF and RPS within Cerebral Palsy
Original Editor - Roelie Wolting
- 1 International Classification of Functioning, Disability and Health Framework (ICF)
- 2 Terminology used in the ICF:
- 3 ICF in (Community Based) Rehabilitation
- 4 ICF and Children with Disabilities
- 5 Rehabilitation Problem Solving (RPS) - Use of an ICF-based form
- 6 References
International Classification of Functioning, Disability and Health Framework (ICF)
The International Classification of Functioning, Disability, and Health, known more commonly as the ICF, is a classification of health and health-related domains. These domains are classified from body, individual and societal perspectives by means of two lists: a list of body functions and structure, and a list of domains of activity and participation. Since an individual’s functioning and disability occurs in a context, the ICF also includes a list of personal and environmental factors. All these factors are related and influence each other. The ICF is WHO's framework for measuring health and disability at both individual and population levels.
ICF has two parts and each part has two components:
Part 1 - Functioning and Disability
- Body functions and body structures
- Activities and Participation
Part 2 - Contextual Factors
- Environmental factors
- Personal factors
Terminology used in the ICF:
- Impairments are problems in body function or structure such as a significant deviation or loss, e.g. a paralysed leg
- Activity limitations are difficulties an individual may have in executing activities such as walking
- Participation restrictions are problems an individual may experience in involvement in life situations such as attending school
- Personal factors include gender, ethnic background, age, other health conditions, fitness, education, social background, coping styles, etc
- Environmental factors include products and technology, natural environment and human made changes to environment, support and relationships, attitudes, values and beliefs, services, systems and policies
ICF in (Community Based) Rehabilitation
Using ICF provides a (scientific) basis for understanding health and health-related states. It supports looking at and analyzing other factors which influence how people with a disability function and participate in their society/community. The ICF establishes a common language around the world and within the Community Based Rehabilitation (CBR) context. The ICF also enables people to look beyond impairments and activity limitations such as; social, environmental, personal and cultural issues. Internationally the use of the ICF in rehabilitation services is becoming increasingly popular.
Please look at this link to understand ICF for Cerebral Palsy in plain langauge: ICF for parents provided by CanChild
ICF and Children with Disabilities
Traditionally, therapy was impairment-based, focusing on addressing the problems of body function and structure which were thought to underlie the functional limitations of the 'disability.' Leading to an assumption that 'treatment' will produce functional results and also perhaps an unspoken belief that more therapy will produce better results. The ICF model provides an opportunity from the outset to talk with parents (and older children) about a different set of primary goals that address function (activity) and social engagement (participation). Using this model will improve results of interventions.
Here is an example:
A child with CP who has problems with eating and speaking because of motor control within the face and mouth area may benefit from assessment and intervention focused on motor impairments that make feeding or speech challenging. At the same time, addressing the activity of eating and the child’s participation in family mealtimes, as well as alternative communication strategies, if necessary, ensures that all components of the child’s functioning and health are addressed at the levels of body structure and function, activity and participation.
People / parents are much more likely to work on things that are important to them than to work on exercises others think are important. How to make eating easier in practice and how to communicate is more important than doing exercises to (hopefully) improve mouth muscle control. Advice on how to use eating time and how to communicate and stimulate the child to communicate during activities of daily living will give much more practice in using the muscles in the mouth area compared with doing exercises everyday for 20 minutes(which might only be done once a week).
Another example:A child with CP may be able to walk when there are no physical barriers on a smooth terrain.
When recognizing the importance of the role of the family, supporting the family is essential. The family has to be involved in setting functional goals in what to achieve. In doing so the family can help to achieve greater functional achievements with less effort compared to traditional impairment-based therapy.
This child is mobile with this tricycle but not when walking.
Try to analyze yourself: what impairments are improving if this child is biking around?
If you want to learn more about the ICF: follow a short online training module on the ICF developed by the WHO. WHO ICF training.
Rehabilitation Problem Solving (RPS) - Use of an ICF-based form
The Rehabilitation Problem Solving (RPS) format is based on the concept of the ICF and is being used increasingly in the international field of rehabilitation. This RPS form also provides room to write down the opinion of the parent and/or the child about the abilities and disabilities. The space for input by the client is based on the understanding that involvement in the whole assessment and planning is important in order to be able to make interventions meaningful and successful.
Case study and use of RPS:Girl, 6 years old, with athethoid cerebral palsy
This girl lives with her parents and grandparents. All love her and are taking good care of her. She is dependent in all activities of daily living (ADL). She can sit for a few moments without support but not stand or walk. She cannot eat, bathe or dress by herself. She stays at home, does not go to school/kindergarten/nursery. She understands everything, speaks some words but not clearly. She points to make it clear what she wants.
Focus is on physical rehabilitation because the parents think she needs to be able to walk before going to school. Here is an example of a RPS form for this young girl.
- Activities and Participation
It is important to not only look only at what the limitations and restrictions are but also to look at what the child can do: what are the abilities and how to improve those abilities. Look at what the child participates in: what are they already doing? How can this be built on?
- Disability and Influence of Environmental and Personal Factors
The ICF / RPS does not only look at impairment, activities, and participation but also at the relationship with and influence of environmental and personal factors.
- Gender: you cannot change gender but can influence attitude towards gender discrimination
- Ethnic background: discrimination of ethnic minorities takes place in many countries; adding disability to this can increase the risk of discrimination.
- Age: children with a disability are often among the most vulnerable group in society
- Social background: poverty of the family will cause often less opportunities for the child with a disability
- Natural environment: living in a flat country or living in a mountainous country will create different opportunities and barriers
- Roads, transportation system, and traffic: all can cause big barriers or opportunities.
- Values and beliefs: what people believe is the cause of disability, and how are people with a disability treated by society.
- Services, systems, and policies: did the country ratify the UNCRPD? What policies are there on education, and more importantly: if the policies are implemented.
- Are there accessible health / rehabilitation services?
- Werner A Steiner, Liliane Ryser, Erika Huber, Daniel Uebelhart, André Aeschlimann, Gerold Stucki, Use of the ICF Model as a Clinical Problem-Solving Tool in Physical Therapy and Rehabilitation Medicine, Physical Therapy, Volume 82, Issue 11, 1 November 2002, Pages 1098–1107