The World-Wide Fellowship of Polio Warriors Project

Description

The World-Wide Fellowship of Polio Warriors is a registered charity founded to provide mapped listings of resources available to all Polio Survivors, including, PPS Specialist Teams, Support Groups, and Polio Survivors. We also provide a wide range of information from a number of sources, including other Polio Survivors, to help with the long term care, and adapted lifestyles, so that we can all enjoy the very best from our lives despite the varied disabilities that the Polio virus left us with.

This project will raise the awareness of Post-Polio Syndrome and the fact that Polio is a long way from disappearing from the UK and the rest of the world. It will show that the best way to plan and manage the long term care of Polio Survivors, is through rehabilitation by Polio and PPS experienced Physiotherapists as important members of any PPS Rehabilitation Team.

Project Director

Peter Thwaites

Project Aims

The aim of this project is to create content in Physiopedia related to the physiotherapy role when working with individuals who have experienced Polio.

By introducing the issues facing Polio Survivors around the world, many with no access to medical, welfare, or social support, our additional aim is to develop a network of Physiotherapists with a sound knowledge and understanding of Polio and Post-Polio Syndrome around the world, all happy to receive referrals from our members, either directly, or through their GPs.

Outside the UK, and other countries providing Medical services free at point of contact, there will be issues with the payment of fees for these services, especially within third world countries where even health insurance is not available, and resolutions will need to be developed, possibly by the way of grants, for example.

To help us to develop our network of PPS Physios around the world, it will be wonderful if any appropriate physios reading this would make contact with me on our members' [1] website, our information website [2] or email me at [email protected]

Project Dates

November 2019 onwards

Articles

This is Me

Hi, this is me, Peter Thwaites. I am a Polio Survivor from the 1950s living in England, where I actually caught the Polio virus in 1953. I was 4 years old, totally paralyzed not even being able to speak, After spending some time in an iron lung, I eventually 'walked' out of hospital. I realise that now I don't look disabled, except, perhaps, my scoliosis, but like another 15 million of us, I am seriously disabled as a result of the damage caused to 98% of the motor neurons throughout my body by the Polio virus I have a new condition called Post-Polio Syndrome, which is a very debilitating condition much like the Motor Neuron disease, with the major difference being that I can control the rate that the damage progresses, unlike the Motor Neuron disease which progresses extremely quickly with devastating results. My disabilities are hidden, to quote the well used comment "Not all disabilities are visible" but extremely debilitating. I have difficulty in breathing, swallowing, and talking, extreme fatigue, mind blowing nerve pains in my legs, and a general weakness down my left side, which makes for walking very difficult, and painful. When we left hospital we were told to live our lives to the mantra "Use it, or lose it", the exact opposite to what we should have been told, "Conserve to Preserve", and consequently we have been seriously damaging the already damaged neurons, resulting in many of us, with paralysis. Fortunately I lived a fairly sedimentary life, so my neurons have survived up until now. To survive in this busy world we worked hard, studied hard and ended up with degrees, Masters, and Doctorates. If we needed help or support we met with other Polio Survivors as the Medical Profession knew absolutely nothing about our condition, so consequently we were ignored and neglected.. Now, however we are all becoming very tired, and need support from the Medical Professions, Governments, Health Authorities, and funding bodies. The World-Wide Fellowship of Polio Warriors is working hard to raise the awareness of Post-Polio Syndrome and improve the lives of so many of us without medical, welfare, or social support.

New pages to be created

  1. Post-Polio Syndrome
  2. .
  3. .

Pages to be reviewed and updated

  1. Physical Therapy Intervention in Post Polio Syndrome