Family of Participation-related Construct: Difference between revisions

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== Introduction ==
== Introduction ==
Family of Participation-related Construct (fPRC) is a framework proposed by researchers as an alternative to the ICF-CY framework.  the fPRC acknowledges that participation is not solely based on an individual's ability, but is influenced by both intrinsic and extrinsic factors, and considers their individual, family and social context.
Family of Participation-related Construct (fPRC) is a framework proposed by researchers as an alternative to the ICF-CY framework.  the fPRC acknowledges that participation is not solely based on an individual's ability, but is influenced by both intrinsic and extrinsic factors, and considers their individual, family and social context.<ref>Kaelin V, Bosak DL, Villegas VC, Imms C, Khetani M. Participation-Focused strategy use among caregivers of children receiving early intervention. American Journal of Occupational Therapy [Internet]. 2020 Dec 16;75(1):7501205090p1–11. Available from: https://doi.org/10.5014/ajot.2021.041962
 
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* ICF


* gap: participation construct unclear in intervention research<ref>Imms C, Adair B, Keen D, Ullenhag A, Rosenbaum P, Granlund M. ‘Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Developmental Medicine & Child Neurology [Internet]. 2015 Sep 28;58(1):29–38. Available from: https://doi.org/10.1111/dmcn.12932</ref>
* gap: participation construct unclear in intervention research<ref>Imms C, Adair B, Keen D, Ullenhag A, Rosenbaum P, Granlund M. ‘Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Developmental Medicine & Child Neurology [Internet]. 2015 Sep 28;58(1):29–38. Available from: https://doi.org/10.1111/dmcn.12932</ref>
* importance of understanding family participation within different context
* importance of understanding family participation within different context<ref>Wright A, Roberts R, Bowman G, Crettenden A. Barriers and facilitators to physical activity participation for children with physical disability: comparing and contrasting the views of children, young people, and their clinicians. Disability and Rehabilitation [Internet]. 2018 Jan 30;41(13):1499–507. Available from: https://pubmed.ncbi.nlm.nih.gov/29382235/</ref>
* overview of components of the fPRC  
** family participation promote well-being and development in young children
** gaps between recommended physical activity level and actual participation
** barriers and facilitators of participation
* overview of components of the fPRC:


== Components of the fPRC<ref name=":0" /> ==
== Components of the fPRC<ref name=":0" /> ==
interplay of intrinsic and extrinsic factors


=== Environment/ context ===
=== Extrinsic Factors ===


==== Environment/ context ====
* physical, social economical, cultural and institutioal context on  participation
* physical, social economical, cultural and institutioal context on  participation
* importance to understand following: preference, sense of self and activity competence within the family
* importance to understand following: preference, sense of self and activity competence within the family
=== Intrinsic Factors ===


==== Preferences ====
==== Preferences ====

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Introduction[edit | edit source]

Family of Participation-related Construct (fPRC) is a framework proposed by researchers as an alternative to the ICF-CY framework. the fPRC acknowledges that participation is not solely based on an individual's ability, but is influenced by both intrinsic and extrinsic factors, and considers their individual, family and social context.[1]

  • ICF
  • gap: participation construct unclear in intervention research[2]
  • importance of understanding family participation within different context[3]
    • family participation promote well-being and development in young children
    • gaps between recommended physical activity level and actual participation
    • barriers and facilitators of participation
  • overview of components of the fPRC:

Components of the fPRC[4][edit | edit source]

interplay of intrinsic and extrinsic factors

Extrinsic Factors[edit | edit source]

Environment/ context[edit | edit source]

  • physical, social economical, cultural and institutioal context on participation
  • importance to understand following: preference, sense of self and activity competence within the family

Intrinsic Factors[edit | edit source]

Preferences[edit | edit source]

  • what is preference and how it impact participation
  • individual factors
    • interest, values?
    • what is important for the family
  • environmental factors
    • cultural influences
    • accessibility/ opportunities
  • implication: identifying preference, accommodating

Sense of Self[edit | edit source]

  • what is sense of self and how it impact participation
  • perception of themselves: identity, roles, values, beliefs
  • self esteem/ confidence
  • implication: promoting, validating,

Activity Competence[edit | edit source]

  • what is activity competence and how it impact participation
  • same as ICF-CY[4]
  • capability and capacity[4](physical and cognitive)
  • perceived ability to participate/ perform
  • skills, knoelwdge, confidence
  • implication: self efficacy, skills development (physical and cognitive), recognise strength and limitations,

Participation[edit | edit source]

  • what is participation? distinguish attendence, onvolvement and engagement
  • What is the significance within family dynamics?

Attendance[edit | edit source]

  • definition
  • characteristics, example: physical presence, limited interaction/ contribution
  • factors affecting: external factors, preference and motivation

Involvement[edit | edit source]

  • definition
  • characteristics, example: active participation, contribution to activity completion or progress
  • factors affecting: interest, imporatance of activity

Engagement[edit | edit source]

  • definition
  • characteristics and example: level of active participation and interaction, emotional investment, commitment
  • factors affecting: connection, belonging, alignment to indivisual beliefs

Resources[edit | edit source]

References[edit | edit source]

  1. Kaelin V, Bosak DL, Villegas VC, Imms C, Khetani M. Participation-Focused strategy use among caregivers of children receiving early intervention. American Journal of Occupational Therapy [Internet]. 2020 Dec 16;75(1):7501205090p1–11. Available from: https://doi.org/10.5014/ajot.2021.041962
  2. Imms C, Adair B, Keen D, Ullenhag A, Rosenbaum P, Granlund M. ‘Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Developmental Medicine & Child Neurology [Internet]. 2015 Sep 28;58(1):29–38. Available from: https://doi.org/10.1111/dmcn.12932
  3. Wright A, Roberts R, Bowman G, Crettenden A. Barriers and facilitators to physical activity participation for children with physical disability: comparing and contrasting the views of children, young people, and their clinicians. Disability and Rehabilitation [Internet]. 2018 Jan 30;41(13):1499–507. Available from: https://pubmed.ncbi.nlm.nih.gov/29382235/
  4. 4.0 4.1 4.2 Imms C, Granlund M, Wilson PH, Steenbergen B, Rosenbaum P, Gordon AM. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Developmental Medicine & Child Neurology [Internet]. 2016 Sep 19;59(1):16–25. Available from: https://doi.org/10.1111/dmcn.13237